February 2025 Newsletter - Flipbook - Page 4
Our
Angel
Archer
Archer
Living in Derby with his mum Charlotte and younger
brother Ezra, 昀椀ve-year-old Archer Davies is a bundle of
joy, 昀椀lling the house with his magnetic personality and
boundless energy. He shares an incredibly close bond
with his little brother who loves nothing better than
making him laugh.
In April 2020, Archer was diagnosed with Angelman
Syndrome, a rare genetic condition that affects the
nervous system and causes seizures, along with severe
physical and learning dif昀椀culties. Mum Charlotte
describes how “It was like winning a really rubbish
lottery. I wouldn’t change Archer for the world but
equally I wouldn’t give him Angelman Syndrome if I had
a choice. The timing of the diagnosis was awful as it
was at the height of Covid. The world was falling apart
around us and suddenly there was another huge thing
for us to get to grips with.”
4
Total Raised
£740.31
of
£5,000
Angelman Syndrome
Awareness Day is on 15th
February, and we wanted
to mark the occasion by
shining a light on one of
our amazing families who
are navigating their own
journey with Angelman
Syndrome, one positive
step at a time. Archer’s
family have fundraised
with Tree of Hope in
the past, but recently
returned to raise more
money for regular
therapies. Read on to
昀椀nd out more.
Charlotte went on to say “I knew something wasn’t right
as Archer hadn’t reached many of his milestones but
getting this diagnosis we’d never even heard of was a
huge shock. Despite its lovely sounding name it really is
not a nice condition.”
Archer’s condition means he needs constant care,
which places signi昀椀cant pressure on Charlotte,
